Your Child Has Autism, and I Don’t Know What to Say: Seven Ways to Go the Extra Mile to Keep Your Friendship Thriving 43

Today I am grateful to be able to share this Guest Post by Bobbi Sheahan, with Kathy DeOrnellas, Ph.D

Your friend’s child has autism, and your relationship is changing.  Let’s face it: you feel like you’re watching your friendship slip away.  You say, “If there’s anything I can do…,” but your friend doesn’t suggest anything, and you feel like a jerk.  You see less of her than ever.  Can This Friendship be Saved?  Yes, it can, and it may be easier than you think.

1.  Let’s start with the real practical stuff:    We’re not avoiding you. It can sometimes be hard for us to get out of the house with our kids, or to get around to making a meal.  Wanna be a hero?  Make dinner.  Don’t talk about it in advance, because your friend will say “No Thanks” in some combination of independence and embarrassment.  Just call or text to make sure someone will be home, and let her know you’re about to leave a cooler on their porch.  Better yet, include paper plates so there’s no cleanup.  I have a neighbor who has TWICE in the past few months called me and said, “I made too much chicken salad,” and has shown up with cornbread and cookies to go with the salad.  This is kindness, my friends.   Your friend may turn you down for book club or an evening of margaritas, but it’s not because she doesn’t want your company. She’s exhausted and can’t face the ordeal that it would be to get out of the house.  Who knew the power of chicken salad?    It’s the thought that counts, says Nagla Moussa of Texas:  “Compassion is key, offer to do the laundry or pick up groceries if you don’t know what else to do!”

Cooking isn’t your thing?  No problem.  Bringing over coffee or a dollar store balloon might work too.   Offer to go for a walk or to the grocery store with Mom or Dad at an odd time – like late in the evening or at 5 in the morning, when the rest of the family is in bed.  An alternative would be to offer to come and hang out at the house with the kids for an hour while Mom grocery-shops solo.  One trip to the grocery store with a child on the spectrum who is experiencing sensory overload would make a believer out of you.

2.  Take their other kids with you the next time you go to the park, the library, or the circus.  The siblings of kids with special needs are some of the most delightful people around, and it’s wonderful to give them a chance to go and Just Be a Kid with another family.  As I write this, my daughter is at a Fall Festival with her best friend’s family.

3.  Listen more than you feel like you should have to.  Especially when the diagnosis is new and frightening, we need to talk about it, probably more than you ever wanted to hear about it.  We’re sorry, but will you (pretty please) listen anyway?  I recently read this article, which confirmed My Fear That I’m a Terrible Bore Who Doesn’t Talk About Anything Else. If you can be patient when we need to Talk About Autism Yet Again, we will eventually tire of the topic and you will have our eternal gratitude.

4.  Be willing to talk about things OTHER than special needs.  Yes, that may sound like a contradiction of what we just said, but really, it’s not.  Make your friend laugh.  Drag him out to the movies.  If he or she can’t get away, bring over a funny DVD and watch while the kiddos are asleep.

 5.  If you are inviting the family over, ask specifically about how you can accommodate, and try to follow the parent’s lead about the extent to which the child will be involved.  No gluten?  No problem.  Your Halloween decorations or your perfume may trigger a meltdown?  Easily fixed.  They are leaving their child with a sitter even though you’ve insisted it’s okay to bring her?  That’s fine too.

It’s much easier for us to tell people what we really need to do if they let us know that they want to know.  Otherwise, we will probably decline perfectly wonderful invitations just to avoid being an imposition on you.

For example, a child with autism might have a favorite video that can be the default setting when the socializing gets to be too much.  Kids may have certain foods that they must avoid, or certain colors that freak them out.  A child may need safety precautions that would be easy for you to take.  The family may want to be home earlier than most, so dinner could start early.  Jeannie, an adult whose only sibling, a sister, has special needs, says:  “Ask the parents if they want to also include their child to join everyone when they go out.  It is hard to find a sitter for someone who is an adult and has special needs. Including them is so nice because they already feel isolated and left out as it is.”

6.  Ask the questions that you really want to ask.  Ask your friend leading questions.  Ask her to tell you her greatest joy or her greatest fear or The Thing She’s Afraid You Won’t Want to Hear.  It may be, “I’m afraid my kid will run around naked or break stuff at your house,” or “We may have to leave before the screeching sends the neighbors running.”   Whatever it is, it’s a kindness to let her know that you really do want to hear it.  I’m sad to tell you this, but many people don’t want to deal with another family’s struggles, and you may feel avoided when in fact the parents simply don’t want to burden you.  So, just ask.

A “Mom of an Aspie” who blogs at  said: ” Maybe it would be better if I just explained up front what I need in a friend… Please don’t think that I am selfish but any plans must be made around my child’s schedule because routines are so important to my child well-being.  If I have to leave unexpectedly or cancel last-minute, I am really sorry and I would appreciate your support and understanding because I am already facing very stressful circumstances.” Yes, this is a tall order, but you are a good friend.  Otherwise, you wouldn’t have read this far.

Another thought:  One reason that your friends might not speak up is that they have learned, through difficult experience, that when they try to simply explain things, people think that they are being given the overwhelming (not to mention impossible) task of Fixing It All, or, as Claudia put it, “Or they think you are looking for charity. Sometimes a listening ear is enough.”  She went on, “Don’t become a know-it-all or  fix-it-all.  Be there and let them know you support them.” Err on the side of asking questions rather than giving advice or opinions.  It’s hard to do, but it will make you a hero to your friend.

7.  Give her the benefit of the doubt.  Here’s a tough one.  What if you’ve judged your friend and thought that you were witnessing bad behavior (and/or bad parenting) when in fact a child may be having a sensory issue or simply be overwhelmed?  Did I just make you cringe?  Sorry.  It’s an understandable mistake; we (that is, the parents) often make it too. Venessa, a reader, has some advice:  “Try to understand that the parent IS addressing the issue and these things take time–sometimes a LONG time — and you’re just seeing a snapshot. If it doesn’t adversely affect you; and particularly when you see that this child’s siblings seem pretty well-adjusted, try to have a little faith in this parent.”

Venessa then reflected on the isolation that a special needs parent often feels, compounded by fatigue: “This parent is probably tired and exhausted (like you are); only the struggles with special needs kids have made her feel lonely and incompetent.”

We said this a few paragraphs ago, but it really is true.  If you’ve read this far, I know that you’re a good friend.  We’re not trying to be selfish; it’s just that we’re at our wits’ end.  This may sound like a lengthy list of demands, but it’s really just a renegotiation of the relationship, which is what is constantly happening in any healthy relationship anyway.  (Isn’t it?)

Friendship is a two-way street, and you really can have a healthy friendship with the parent of a child with autism or another special need.  They — I mean we — really need you.  Paradoxically, we seem less available to you than ever when we need you the most.  We don’t expect you to always take a back seat or to solve our problems; we just want you to bear with us a bit as we do our best to be a good friend and a good parent at the same time.  It will get better with time as we both get used to the rhythms of life with special needs.

So, to summarize, we appreciate your patience.  Really, we do.  We also like it a lot when you feed us and listen to us.  We’ll be grateful, and we’ll do our best to make it up to you over time.  Plus, in your hour of need, we really hope to be there for you too.  Through necessity, we tend to be good in a crisis.

If you’d like to know more about this subject, another excellent resource is Parent Coach Connie Hammer’s wonderful article, “Parenting 101: Where Did My Friends Go?  Dealing With a Shrinking Social Circle After a Diagnosis of Autism.” From the emotions that a parent feels in response to the diagnosis, to the realization that Johnny isn’t going to be welcome in some playgroups, to the reality of having one’s life consumed by therapies, author Connie Hammer goes deeper into the parents’ point of view, and I recommend it highly.

Just after I finished writing this article, a friend pointed out a lovely post on the same topic, which is found on the perfectly-named blog “I Love You Song:”

This is the first of two articles.  In our next article, it’s your turn!  That’s right; the friends will talk back.  If you have a friend whose child has autism, and there’s something you’ve always wanted to tell them (or ask them), please email the authors at  If we use your comment, we’ll say so unless you indicate in your email that you’d prefer to remain anonymous.

Bobbi Sheahan and Kathy DeOrnellas, Ph.D., authors of What I Wish I’d Known About Raising a Child With Autism; A Mom and a Therapist Offer Heartfelt Guidance for the First Five Years (Future Horizons, 2011).  It is available at and wherever books are sold.  


  1. This is a very kind-hearted article about a tough topic. Many of us who are parents of autistic kids often express frustration, anger or pain when people in our universe don’t understand what having an autistic child means. As parents, most of us didn’t have a clue what parenting autism would entail. It is only fair that our friends, family members and neighbours would likely be in the dark, too. This is such a helpful post with empathy for everyone affected by what a dramatic change a diagnosis of autism can mean to something as basic as friendship. Thank you, Bobbi, for this post.

    • Thank you so much!
      It’s important to remember that special needs bring both challenges and blessings.
      Your kind and insightful words are a perfect example of the wonderful things that we encounter BECAUSE we have special needs in our lives.
      Thank you, and Happy New Year.

  2. Something else to keep in mind is that autism does have a genetic component, so your friend may be on (or close to) the spectrum herself, and therefore may not respond in the way you are expecting. But that doesn’t mean she doesn’t need your friendship and support!

      • I’m glad Sue hosted you as well. I will check out the new post, but I’m kind of on a delayed schedule, so my comment will probably be late…lots to do re-inventing my writing business.

    • Thanks for stopping by Stephanie! I just posted part 2! Did you notice I updated the look of the blog? Thanks again for all of your help!

      • I actually did notice. Still adjusting. I definitely like the bigger, opener look to it and the rather obvious links at the top are great for promoting your work!

        No jumping letters either, which is very good. 😀

  3. Sorry I meant to comment sooner! Sue- Love the new look of the blog & thanks for hosting. Bobbi- Great article, I was so honored to be a part of it.

    And it has been great to meet “C” through this process 🙂 We are all in this together!

    • AspieSide,
      Thank you! I’m glad you like the new look.

      Bobbi did a great job and I am so glad she included both you and “C” and that Many Hats Mommy stopped by too. Of course, I can always count on Phil and Sharon to contribute.

      Bobbi said she received some e-mails on the post too, so it will be interesting to see the followup. Depending on when she finishes it, I’ll probably post it sometime next week. I have to get a blog posted for Best of the Best at S-O-S first. I hope all of you have a wonderful weekend.



  4. Wow, a great post! Right on the money! I have a daughter with Down syndrome, and I have experienced the same types of problems with friends, and shockingly with even family members. I’ve people say, when they learn of the diagnosis, “Oh, I’m so sorry.” like it’s a tragedy. I assure them we don’t look at it that way. Thanks for your frankness and the quality of your post.

    • Thank you so much! And yes, I have had some email feedback about the fact that what I say applies to many different kinds of challenges. Bless you and your daughter!! Thanks

  5. Bobbi, dear, I simply LOVE your style! I am one of your biggest fans. This article is amazing–a great way to help our friends understand. Just shared about five different times on Facebook. 😉 Thanks for saying what our tired brains can’t think to say!

  6. Thank you for posting my comments/insight on your blog. I always feel like people think I want pity or charity when I talk about my son’s challenges. I simply need to vent. I don’t want or need their solutions because they don’t know my son well enough to help and they don’t bother to try to get to know him. No one ever really asks anything about him. The few that do ask are the ones that are just as busy as me with their own life and that is great because I would not expect them to drop what they are doing for my needs. I am a strong independent woman and I don’t expect anyone to help me.

    • C,
      I get it. You are only looking for a supportive ear from time to time. There is nothing wrong with that. I’m glad Bobbi included you in her post.

    • C,
      IMHO, your comments were the heart of my article!! Thank you so much for sharing your words. I feel the same. This is an article that was surprisingly painful to write because I don’t want people to feel sorry for me or tell me what I want to hear. When you see the follow-up article (The Friends Talk Back — I’m working on it now!!), I think you’ll be moved. People have read this article and given some amazing, inspiring responses. I am as thrilled to write that post as I was apprehensive about this one! We are all on this journey together. Thanks.

  7. I also thoroughly enjoyed and understood the impact of this post. Every word rings true and certainly applies to all people with disabilities, the elderly, the widowed, the lonely and on and on. A simple extension of an act of kindness validates a person’s being and gives them a feeling that they are important and valued. A very moving post….thanks!

    • Sharon and Phil – Thank you so much! I do agree that this would apply to any number of challenges. It’s so easy to get lost in our own struggles, but I want to be a better friend as well. We could all do with more kindness! I am so moved by your kind words. Thank you! Thank you!

  8. Sharon,
    I know the feeling believe me. My son has lost friends due to lack of understanding too and that is what hurts the most, especially since two of his former friends’ parents are teachers who should have a better understanding. However, I have learned that education sadly does not preclude ignorance.

    We just have to keep trying to get through to people no matter how long it takes.

  9. Hi Sue – I have read other articles like this but, each and every time, I realize that these sentiments can never be offered enough times for the sake of all people in challenging circumstances. As a culture we shy away from what makes us uncomfortable. Sometimes I just want to scream, “Step up. Push your boundaries. Put yourself in the other’s shoes.” I just don’t think that we try hard enough. . .

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